Megan Schomer
Rays for Rare
President-CEO
Megan Schomer is the heart behind Rays for Rare, a nonprofit she founded after the loss of her beloved son, Corwyn. Born with a rare brain malformation, Corwyn’s life was medically complex—he couldn’t walk, talk, or eat, and required intensive, around-the-clock care. Megan often described their home as feeling more like a pediatric ICU.
Through the years of caring for Corwyn, Megan experienced the deep isolation many families face when caring for a medically fragile child at home. While hospitals often receive support from charitable groups, the families doing the hardest work—at home—are frequently left on their own. After Corwyn passed away at home in 2016, Megan turned her grief into action.
That’s when Rays for Rare was born. Her vision was simple but powerful: to bring uplifting, non-diagnosis-specific support to families of medically fragile children. From hands-on services at home to meaningful community events, Rays for Rare is about meeting families where they are—physically and emotionally.
Megan is a passionate advocate for the medically fragile community, which includes over 8,000 rare diseases. She believes the diagnosis may differ, but the caregiving journey is remarkably similar—and often overlooked in our curative-focused culture. She’s committed to raising awareness around pediatric palliative and hospice care, and creating better systems for families navigating these challenges. Megan serves on numerous advisory councils at St. Luke’s Children’s Hospital and regularly speaks at events to help shine a light on this underserved population.
In 2019, Megan left a successful 15-year career in real estate—where she was a top producer and corporate leader—to step fully into her role as President and CEO of Rays for Rare. Her business experience and personal journey give her a unique and powerful perspective to grow this one-of-a-kind organization.
Megan lives in Eagle, Idaho with her son and loves adventure of all kinds—whether it’s traveling, trying new restaurants, or exploring the beauty of her home state.
