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    <loc>https://www.raysforrare.org/home</loc>
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    <lastmod>2025-07-24</lastmod>
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      <image:title>Home</image:title>
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    <image:image>
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      <image:title>Home</image:title>
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      <image:title>Home - FROM A FAMILY</image:title>
      <image:caption>“We joined Corwyn’s Cause because our child has a terminal rare disease and as a parent with a medically fragile child you are always searching for support in any capacity you can. This charity has given us amazing support and provides us the things we need, especially in rough times. They have opened up a whole new world to us of other medically fragile families and that is something we need more than anything. Relating to others going through the same things is extremely helpful through this journey. It gives us hope to have people out there and Corwyn’s Cause to help us through the roughest of times.” ~ Morse Family</image:caption>
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    <image:image>
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      <image:title>Home - UPLIFTING SUPPORT</image:title>
      <image:caption>- Family Events - Lawn Care - Resources for Families - Housekeeping - Grocery Delivery - Snow Removal - Support Groups - Other Support or Uplifting Care Learn More</image:caption>
    </image:image>
    <image:image>
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      <image:title>Home - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  <url>
    <loc>https://www.raysforrare.org/about</loc>
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    <lastmod>2025-06-26</lastmod>
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      <image:title>About</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/1569358705576-8LO79Y31P0Q7TMR7X4Q8/sunflowers.jpg</image:loc>
      <image:title>About</image:title>
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  <url>
    <loc>https://www.raysforrare.org/volunteer</loc>
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    <lastmod>2023-09-19</lastmod>
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  <url>
    <loc>https://www.raysforrare.org/services</loc>
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    <lastmod>2020-12-07</lastmod>
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    <loc>https://www.raysforrare.org/contact</loc>
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    <lastmod>2022-03-17</lastmod>
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  <url>
    <loc>https://www.raysforrare.org/rays-of-light</loc>
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    <lastmod>2019-09-23</lastmod>
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  <url>
    <loc>https://www.raysforrare.org/sponsors</loc>
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    <lastmod>2026-03-10</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/36c6bbca-882d-47f9-8b64-f48078f26d54/1.png</image:loc>
      <image:title>Sponsorships - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/aa64175c-9823-4b44-892e-f9020da8a452/2026+Rays+for+Rare+Golf+Tournament+flyer.png</image:loc>
      <image:title>Sponsorships - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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  <url>
    <loc>https://www.raysforrare.org/legacy</loc>
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    <priority>0.75</priority>
    <lastmod>2023-10-05</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/b39cf0e0-7fb6-4df3-87b7-04e22ade916a/5E931038-C58D-4548-89B4-153168835B2B.jpg</image:loc>
      <image:title>Legacy</image:title>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/d572ca9d-17d7-4b6a-9380-4af2289ae4b3/Resources-WACD-Cover.jpg</image:loc>
      <image:title>Legacy - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.raysforrare.org/our-team-1</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-08-08</lastmod>
    <image:image>
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      <image:title>Our Team - CEO</image:title>
      <image:caption />
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/1751407762626-QTDCIOXNN2V2Q01HGY9U/D33E7216-256A-4250-941C-D702F9CD3915.jpg</image:loc>
      <image:title>Our Team - Office Administrator</image:title>
      <image:caption>Kendra Tietz, MSN, RN With 19 years of experience as a hospice nurse, Kendra is deeply passionate about providing compassionate, dignified end of life care. She holds a Master's Degree in Nursing Leadership and Management and is dedicated to advancing quality care for patients and families during life's most vulnerable moments. Kendra currently works as the office administrator for Rays for Rare and also serves as Secretary on the Board of Rays for Rare, supporting rare disease awareness and advocacy for medically fragile children. She considers it an honor to serve others through her work and leadership.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Our Team</image:title>
      <image:caption>Megan Schomer Rays for Rare President-CEO Megan Schomer is the heart behind Rays for Rare, a nonprofit she founded after the loss of her beloved son, Corwyn. Born with a rare brain malformation, Corwyn’s life was medically complex—he couldn’t walk, talk, or eat, and required intensive, around-the-clock care. Megan often described their home as feeling more like a pediatric ICU. Through the years of caring for Corwyn, Megan experienced the deep isolation many families face when caring for a medically fragile child at home. While hospitals often receive support from charitable groups, the families doing the hardest work—at home—are frequently left on their own. After Corwyn passed away at home in 2016, Megan turned her grief into action. That’s when Rays for Rare was born. Her vision was simple but powerful: to bring uplifting, non-diagnosis-specific support to families of medically fragile children. From hands-on services at home to meaningful community events, Rays for Rare is about meeting families where they are—physically and emotionally. Megan is a passionate advocate for the medically fragile community, which includes over 8,000 rare diseases. She believes the diagnosis may differ, but the caregiving journey is remarkably similar—and often overlooked in our curative-focused culture. She’s committed to raising awareness around pediatric palliative and hospice care, and creating better systems for families navigating these challenges. Megan serves on numerous advisory councils at St. Luke’s Children’s Hospital and regularly speaks at events to help shine a light on this underserved population. In 2019, Megan left a successful 15-year career in real estate—where she was a top producer and corporate leader—to step fully into her role as President and CEO of Rays for Rare. Her business experience and personal journey give her a unique and powerful perspective to grow this one-of-a-kind organization. Megan lives in Eagle, Idaho with her son and loves adventure of all kinds—whether it’s traveling, trying new restaurants, or exploring the beauty of her home state.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Our Team</image:title>
      <image:caption>Kendra Tietz MSN, RN Secretary With 19 years of experience as a hospice nurse, Kendra is deeply passionate about providing compassionate, dignified end of life care. She holds a Master's Degree in Nursing Leadership and Management and is dedicated to advancing quality care for patients and families during life's most vulnerable moments. Kendra currently works as the office administrator for Rays for Rare and also serves as Secretary on the Board of Rays for Rare, supporting rare disease awareness and advocacy for medically fragile children. She considers it an honor to serve others through her work and leadership.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Our Team</image:title>
      <image:caption>Jon Hastings Tresidio Homes Treasurer Jon Hastings is the owner of Tresidio Homes based in Meridian, Idaho. Before moving to Boise, Jon grew up in Houston, Texas, then earned a Bachelor's Degree in Construction Management with a Minor in Business Management from Brigham Young University. Tresidio Homes was founded in 2009 as a natural outgrowth of Jon’s passion for personalized home design. Today Tresidio builds over 100 homes per year with a focus on design flexibility and home buyer experience. The growth of Tresidio has also facilitated its philanthropic mission of bringing support to medically fragile children and their families in the Treasure Valley. Jon enjoys spending time with his wife and three kids, fly fishing, and golfing.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/0040a52c-5688-442f-b8db-f60730f0f8f2/IMG_7095.jpg</image:loc>
      <image:title>Our Team - Make it stand out</image:title>
      <image:caption>Scott Summerlin Wealth Advisor Scott began his finance career in 2001 as a Financial Analyst at Hewlett-Packard and has served as a Financial Advisor since 2007. Scott utilizes his experience to develop strategies that focus on building and protecting your assets, customizing portfolios to match your individual goals and constraints, and ensuring you are prepared for life’s many unknowns as they arise. Scott's key to success is to Serve Others. Scott enjoys road trips, golf, concerts, football, and the beautiful outdoors of Idaho. Weekends often find him hiking, camping, boating, and biking. Notable achievements US Air Force Academy Honor Graduate Decorated Air Force aviator &amp; combat veteran MBA with Finance concentration, University of Washington Business School Featured presenter at Smart Women, Smart Money Conference</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/1588290275429-HGK4XDLX1HHQRMD6UJW6/smar.jpg</image:loc>
      <image:title>Our Team</image:title>
      <image:caption>Sean Marsh Attorney Born the 2nd of 6 children, Sean jumped at the chance to help families of medically fragile children. His sister Kelly succumbed to Campomelic Dysplasia a few months after she was born, while Sean was in high school. Seangraduated with a Bachelors in Political Science with an emphasis in Economics at Montana State University. He then served 2 tours in the US Army as a Ranger qualified Infantry leader. Immediately upon Honorable Discharge, Sean integrated back into society at the University of Denver Sturm College of law. He works as an attorney for a civil highway construction company. Sean and his beautiful bride live in Boise and can be found tubing down the river in the summer and skiing Bogus Basin in the winter.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Our Team - Make it stand out</image:title>
      <image:caption>Brianna Wardle Black Pine Property Management and Real Estate Board Chair Brianna grew up in Idaho since she was three years old. She graduated from Boise State University in 2015 with a Bachelor of Business Administration (Marketing) degree. Brianna is a real estate agent and property manager. When she's not working, you will most likely find her outdoors (hiking, snowboarding, snowmobiling, camping or pretty much anything active that gets her outside). She also loves to travel overseas and explore many different areas of the world. Since Brianna Wardle was a young girl, she has enjoyed giving back; whether it was using her Christmas money to buy toys for other kids; bake sales for the local animal shelter; or putting together a car wash to raise money for the American Red Cross after Hurricane Katrina. She's excited to bring years of customer service, graphic design, social media, marketing and advertising experience to help with the growth of Rays for Rare.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5d7ab3377f604857c4e0776e/c5715288-02d8-4f78-9c6a-b9792455cd3a/WhitneyFinalEdit-5.jpg</image:loc>
      <image:title>Our Team - Make it stand out</image:title>
      <image:caption>Whitney Price, LCSW, CGCS Children’s Palliative &amp; Supportive Care Supervisor Whitney Price, LCSW is a licensed clinical social worker and supervisor of St. Luke’s Children’s Palliative and Supportive Care program.  Whitney started this program in 2019 which is the first pediatric specific palliative care program in Idaho.  She received the Emerging Leader Award from Social Work in Hospice and Palliative Care Network (SWHPN) in 2022.  She chose pediatric palliative care for its holistic team approach which values child and family-centered care. She works to help children with serious, chronic or limiting-illness and their families navigate through their medical journey.  Whitney works with medically complex children and families to explore their goals of care, values, enrich communication and coordination, and provide mental health support.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Our Team - Make it stand out</image:title>
      <image:caption>Sean Timpane MD Palliative Care Physician Sean Timpane, MD specializes in palliative medicine and works as a pediatric palliative care physician for St. Luke’s Children’s. He is passionate about providing family-centered care including parents and siblings of children with serious illness and complex conditions.  He works with his team to improve communication and collaboration among patients, families and providers in an increasingly complex healthcare system.  They seek to prioritize a holistic view of patients as individuals with a focus on meaningful experiences, overall quality of life and how parents can navigate ever uncertain medical futures while supporting all the members of a family.</image:caption>
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      <image:title>Our Team - Make it stand out</image:title>
      <image:caption>Ty Travis Post Insurance Ty Travis is a Commercial Insurance Broker at The Partners Group. He grew up in Eagle and graduated from Boise State with a Business Management degree while playing on the men’s golf team. Following graduation, he played professionally on PGA Tour Canada and various other tours around the US winning three professional events in two years. In 2018 he joined Post Insurance and by 2023 he became a partner in the company. In 2024 Post Insurance merged with The Partners Group, becoming the largest independent agency in the Pacific Northwest. Ty is married to his high school sweetheart Amanda, and they have three children, Ava, Noah and Delaney.</image:caption>
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    <loc>https://www.raysforrare.org/donate</loc>
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    <lastmod>2019-09-24</lastmod>
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    <loc>https://www.raysforrare.org/terms-of-service</loc>
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    <lastmod>2019-09-25</lastmod>
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    <lastmod>2019-09-25</lastmod>
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    <lastmod>2025-11-12</lastmod>
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      <image:title>Sunshine Gala (Copy) - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <loc>https://www.raysforrare.org/store</loc>
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    <lastmod>2021-07-29</lastmod>
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    <lastmod>2025-07-12</lastmod>
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      <image:title>Store - Rays for Rare ☀️ Hat (Gray/Yellow)</image:title>
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      <image:title>Store - Short-Sleeve Unisex T-Shirt</image:title>
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